Wednesday, April 29, 2009

Circus at the Doss house

Well, the poor therapist that comes to our home once a week is never going to want to have more than one child after being at my house. When she arrived today all my kids were home. As I calmly make Austin eggs over easy and toast as he crying that his mouth jaw line area hurts. Livia is asking for cereal as her ear has yellow puss running down her check(swimmers ear). Chase just went into shock that when she comes she means time to work.

Liv started a fever Saturday night along with vomitting, still has fever along with cough and swimmers ear. That means 3 days so far home from school this week. Austin was in so much pain that we rushed him to the dentist before lunch to only have him crawl up into a ball and not let the dentist go near him. Finally she got a peek and says his permanent molars are coming in. He spent the day on the couch crying in pain and sick to his tummy. Come 7 pm he actually vomitted and then went to sleep.

In the mean time I look over at Chase and he has pink eye which must be what Liv and Austin have as well but they keep wiping the gunk off before I could see it.

At least they are all finally sleeping as Eric is snoring on the couch and I am full of energy. Go figure! Maybe because I am looking forward to meeting this new pediatrician in town. Even though she is all the way down at the World Golf Village. Kids are waking up early tomorrow!!

Thursday, April 23, 2009

Behavior training today!

Today was an interesting day. I decided to attend a behavioral training class for autistic children. Now I have left Chase at church or his moms morning out program from time to time. But I decided to leave him at a close neighbors house. Her daughter is about the same age and I thought they could have some social time. She said he did awesome and played along side her. He even tried the sand box. The kicker is he ate 2 bananas for the first time since his senory processing disorder kicked in around 18 months old. That is it from now on he is eating over there.

What dawned on me after we got home today I tried to feed him and he went into a tantrum were he held his breathe. It is his chair. It is hard and straight up and the tray is much smaller than the high chair he ate in today. SO we are borrowing the high chair to see if that is his issue with feeding.

The food aversion therapy has not really been successful. And I know he needs to eat more than just white crunchy snacks or muffins all day. So hoping that between the high chair and what I am learning at the ABA training we might actually have some head way.

But of course things can't start looking to up. He started scratching his head again and I felt his lymph nodes are all swollen again like little ping pong balls are across the back of his head. Another call to infectious disease tomorrow. Yikes!

Wednesday, April 22, 2009

Chase had his 1st real BM today!!

Okay so this may sound gross to some of you but Chase had his first ever solid poop today. Which is great maybe his gut is starting to heal a bit. He fought with his developmental therapist today like never before but maybe that is because he is actually waking up from his fog.

We went to the pool today. I was so proud of Austin he just jumped right in as if he had no idea it was freezing cold. Which makes me more excited because he is starting the swim team this year!! Livia will start to as long as she can stay clean. Poor girl has had some major regression with all our Chase issues. She is back to potting in her pants from time to time. Yet she is such a great swimmer I hate to not put her on the team. Keep us in prayer because sign ups are on Sunday.

At the pool today Chase did not even try to get into the water. I was so proud of him for respecting it that way. But I wish I had a video because he decided out of excitement to chase himself in circles. Just like a dog chasing his tail. It was so stinkin cute!!

My goal this summer is to simplify with the kids. Chase has never been able to get into a good routine with his naps becasue of the others and carpooling and school, etc. So we are going to make life a lot less complicated this summer.

Sunday, April 19, 2009

Biomedical Treatment

Well we finally got into one of the biomedical doctors in town. She is an MD internist that believes in healing the body from the inside. After spending the first hour with her I knew this is what God had planned for us. At the end of our 3 1/2 hour session I felt so much better about Chase and what route we need to take for him.

She noted that he is a spiritually gifted autistic child one that is in tone with nature. After months of me telling doctors about how abnormal his poops are she got to see one and said "oh boy this little boys gut is in trouble." She has started us out on a very simple and not too expensive treatment plan to start with.

WOW day 2 he waved for the very first time in his 22 months of life. The feeling of excitement I had was just unbelievable. As I was telling one of the moms they said "Oh my child has been doing that since she turned one." I just thought you have no idea what a huge milestone this is for him.

Today was day 4 and he started out actually showing seperation issues from me. Normally I can walk away and he does not even understand that I am gone. But today he cried so hard that he throw up. Throw up bad but the fact that he actually got upset that I left was great. Later on we went to the beach and he fell in love with the ocean water. Running in circles flapping his arms like a bird. It wore him out and he crashed in the stroller. When he woke up he actually made a noise at me when I asked him if he was hungry. Normally I would get a blank stare or he would just walk away. He even tried to say "mama mmmm(which I think was more)."

Now I struggle with the fact that he needs me to spend more one on one time working with him on his new music and art therapies. Sometimes I just want to be selfish because I get tired of running him all over to appointments. Or I commit myself to something to take my mind and time off of him. But seeing what a difference this is making so far I know that he is my top priority.

Thanks so much for all the support everyone has given us. Somedays I don't know how we would do it without all of you!!