Thursday, July 23, 2009

A day from you know where...

This has been one of those weeks that I wished my mother was still alive and here to help me out. Or at least that my sister lived in town. Today just tipped my bucket over. Layla our blonde dog got really sick over this week so I finally took her to the vet. After hundred of dollars in testing they are still not sure what is wrong with her. She is hooked up to IV getting a steroid and hydration. She is 9 years old and has been like a puppy for so long. Where do you draw the line? How far do you go in testing? She is like one of children yet she is a dog? Which brings me to our youngest Chase and all his testing.

Two weeks ago the Lord blessed us with an immediate opening into the CARD(Center for Autism Related Disorders clinic) which is normally a 9 month waiting or longer. I was not quite prepared since I only had a days notice thanks to my wonderful speech therapist. Once there we meet with Dr. Mae Barker who was absolutely amazing and accomadating. They proceeded to start the ADOS(Autism Diagnostic Observation Scale) on Chase. He was in such a great mood that day and actually doing things that we have not seen him do in the past. But after almost 2 hours of testing and meeting the genetics doctor who just happened to be in Jax from Gainesville for the day. They confirmed that Chase is Autistic. Yet they said they have never really met a child like Chase that is so happy that is of course unless you try to get him to do something functional. What does that mean? Still not sure except that we have started finally trying to communicate with him. He little brain is finally taking in some of this therapy we have been doing since October. We got the sign for eat the other day not prompted. Which sounds small but it is huge in his book.

We are now going to start using the picture system with him to try and get him to come to us and express his needs and wants. He is such a trooper considering that we have tried to maintain life with Austin and Liv and all there activities. We have cut back on a lot of things and I have unfortunately had to start saying no to certain activities. Chase is too much of a handful to go many places like the beach or a park that is not gated in compeletly. He is a runner and boy is he fast. And he does not understand that he could get hurt. It just does not compute in his little brain yet. So only time is going to work for him.

Thanks to all of you guys for being patient with us and not getting feelings hurt when we can not go somewhere or do something. It is just to hard with him right now and it causes me to have major stress attacks. I have already been in the ER once this month and even though it was not a bad experience there(the male nurse was a cutie, HeHe) I am trying to stay out of there.

Sunday, July 5, 2009

A week without daddy!

Well Eric left today for the week and of course spoiled Chase before he left. So I tried taking him to an Autism support group at Pump It Up which he usually loves but he was not having it today. Ever since the diary incident he has not been himself. This is when I wish we had family close by to help out. Or at least that my mother was still around to be there for me. I get so jealous sometimes that everyone around has all the help from family. I thank the Lord everyday that I have found such a close net of friends that I can call last minute for help.

The past few months I have kind of been in hide out because I am going through some denial and I realize that now. We are going to try hard to get back on track. Chase is such a trooper when I make him go with the flow.

Well he finally fell asleep which he has not been doing much of recently. Up at all hours again not sure why. Of course the few times he actually falls asleep for nap is when I have to wake him to get the other two kids somewhere. It is a never ending circle!

Saturday, July 4, 2009

Happy 4th of July

What a great holiday! Last night we took the kids to the local Suns game to watch fireworks at the end. Wow they love there fireworks!! Chase really liked them for the first 2-3 minutes then he became overwhelmed. He grabbed my head with death grip so we ran him to the car. Good trial run to see about us watching tonights from downtown. Guess I'll be taking Liva and Austin by myself.

It has been a crazy week and a half. Last Thursday I gave Chase what had been on of his safe foods out to eat. Within 30 minutes he started acting funny. I called a friend who looked it up and told me it now has diary in it. For several days he was just kind of spacey then real aggresive. Then this past week he finally broke out in hives all over his face and legs. He has been miserable with the itchys. Needless to say that cured my wanting to re-introduce him to diary and wheat products.

For several weeks I have been back and forth on should I try him on wheat or diary again. Personally I am so over this diet. Of course he has no clue what the difference is since he has always been diary free and gluten free for 2 months short of a year. But no one realizes how much work it is to make sure every little thing he touches or goes around does not have one of the off limit foods. Plus the expense is just insane. It is so hard for him to even be around other kids just in case they are snacking and he grabs soemthing from them. But after this episode I know that the Lord has given him to me to protect and that I can't complain anymore. So we will stick with our plan and move forward with caution.